2024 National SCD Policy Forum (Day 2)
The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event.
2024 National SCD Policy Forum (Day 1)
The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event.
2023 SCDAA Convention
This virtual conference will address the multifactorial aspects of sickle cell disease and foster the exchange of the latest scientific and clinical information related to the disease through innovative symposia, training seminars, interactive panel discussions and exciting activities designed to educate, motivate and mobilize the sickle cell community.
Empowered Caregivers Forum (Oct)
Join a forum created to support, educate & share resources with caregivers of a child/adult with sickle cell /thalassemia.
2023 National SCD Policy Forum (Day 2)
The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event. This tri-collaborative event is hosted by Sick Cells, the Sickle Cell Disease Association of America, Inc. (SCDAA) and the Sickle Cell Community Consortium (SCCC).
2023 National SCD Policy Forum (Day 1)
The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event. This tri-collaborative event is hosted by Sick Cells, the Sickle Cell Disease Association of America, Inc. (SCDAA) and the Sickle Cell Community Consortium (SCCC).
2024 National SCD Policy Forum (Day 1)
The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event. This tri-collaborative event is hosted by Sick Cells, the Sickle Cell Disease Association of America, Inc. (SCDAA) and the Sickle Cell Community Consortium (SCCC).
SCD & Reproductive Health Mini Seminar (Nov)
Hosted By: Cayenne Wellness Center & SC RED
Cost: FREE
2022 SCDAA Convention
This virtual conference will address the multifactorial aspects of sickle cell disease and foster the exchange of the latest scientific and clinical information related to the disease through innovative symposia, training seminars, interactive panel discussions and exciting activities designed to educate, motivate and mobilize the sickle cell community.
Empowered Caregivers Forum (Oct)
Join a forum created to support, educate & share resources with caregivers of a child/adult with sickle cell /thalassemia.
2022 Walk 4 Sickle Cell Virtual Challenge - END
Join Sickle Cell Foundation of MN for our 2022 Sickle Cell Virtual Fundraising Challenge and help us increase awareness and stomp out the stigma and mistreatment of Minnesotans impacted by sickle cell disease while also raising funds to support the work and mission of Sickle Cell Foundation of MN.
14th Annual SCD Educational Summit
14th Annual Sickle Cell Disease Educational Seminar, hosted by Cayenne Wellness Center
The theme is Embracing Possibilities! This year’s event is virtual AND in-person! Registration is now open.
11th Annual Sickle Cell Disease Therapeutics Conference
Global Blood Therapeutics (GBT) and the Sickle Cell Disease Association of America (SCDAA) presents the 11th Annual 2022 Sickle Cell Disease Therapeutics Conference (SCDTC) on Wednesday, September 14, 2022. This unique conference brings together key sickle cell disease stakeholders focused on discussing issues impacting the SCD community.
2022 RARE Patient Advocacy Summit
Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit.
This year, the Summit will be a hybrid event so all can attend – in person at the Town & Country Hotel in San Diego, California and live streamed online in our virtual event platform.
2022 Walk 4 Sickle Cell Virtual Challenge - wk 4
Join Sickle Cell Foundation of MN for our 2022 Sickle Cell Virtual Fundraising Challenge and help us increase awareness and stomp out the stigma and mistreatment of Minnesotans impacted by sickle cell disease while also raising funds to support the work and mission of Sickle Cell Foundation of MN.
2022 Walk 4 Sickle Cell Virtual Challenge - wk 3
Join Sickle Cell Foundation of MN for our 2022 Sickle Cell Virtual Fundraising Challenge and help us increase awareness and stomp out the stigma and mistreatment of Minnesotans impacted by sickle cell disease while also raising funds to support the work and mission of Sickle Cell Foundation of MN.
2022 Walk 4 Sickle Cell Virtual Challenge - wk 2
Join Sickle Cell Foundation of MN for our 2022 Sickle Cell Virtual Fundraising Challenge and help us increase awareness and stomp out the stigma and mistreatment of Minnesotans impacted by sickle cell disease while also raising funds to support the work and mission of Sickle Cell Foundation of MN.
2022 Walk 4 Sickle Cell Virtual Challenge - wk 1
Join Sickle Cell Foundation of MN for our 2022 Sickle Cell Virtual Fundraising Challenge and help us increase awareness and stomp out the stigma and mistreatment of Minnesotans impacted by sickle cell disease while also raising funds to support the work and mission of Sickle Cell Foundation of MN.
2022 Walk 4 Sickle Cell Virtual Challenge - START
Join Sickle Cell Foundation of MN for our 2022 Walk4Sickle Cell Virtual Challenge and help us increase awareness and stomp out the stigma and mistreatment of Minnesotans impacted by sickle cell disease while also raising funds to support the work and mission of Sickle Cell Foundation of MN.
Let’s Talk About Sex: SCD, Dating & Intimacy
Sickle Cell can impact dating & intimacy but it's rarely discussed. Join us to learn more and ask the questions that matter to YOU!
SCD & Reproductive Health Mini Seminar (July)
Hosted By: Cayenne Wellness Center & SC Red
Cost: FREE
Empowered Caregivers Forum (July)
Join a forum created to support, educate & share resources with caregivers of a child/adult with sickle cell /thalassemia.
9th Annual Warriors Convention
This Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created, and hosted entirely by the sickle cell patient and family community.
Sickle Cell & Chronic Pain Management Symposium: Power Up Hope
A day of education, resources, shared experiences, and networking.
Nutrition in Sickle Cell Disease Conference
Are you interested in nutritional approaches that improve health outcomes for Sickle Cell Patients?
16th Annual SCD Research & Educational Symposium
IN-PERSON AND VIRTUAL REGISTRATION OPTIONS AVAILABLE. VIRTUAL ATTENDEES CAN WATCH ALL MAIN ROOM SESSIONS LIVE. SIMULTANEOUS BREAKOUT ROOM SESSIONS ARE AVAILABLE 30 DAYS AFTER THE SYMPOSIUM.
Medical Perspectives on SCD & Reproductive Health
May is Women's Health Month
Sickle Cell Disease (SCD) can impact puberty, periods, sexual and reproductive health. Individuals who were born female with sickle cell disease may experience delayed onset of puberty, a greater number of pain crisis than males due to normal changes in hormones and some may have difficulty getting pregnant and/or high-risk pregnancies. Unfortunately, research has identified deep disparities in access to reproductive and sexual health care in this area.
Join us in a presentation and discussion with medical providers and experts from Children’s Minnesota’s Sickle Cell Program and The Pediatric Adolescent Gyn Program.
*This is a LIVE presentation via Zoom. Attendees are invited to participate in a Q&A session following the presentation and discussion.
Women's Reproductive Health Roundtable: A Warrior Discussion
May is Women's Health Month
Join Teonna Woolford and Rae Blaylark in this a roundtable discussion with women in the sickle cell community openly discussing the issues that matter to female warriors.
*This is a LIVE presentation via Zoom. Attendees are invited to participate in a Q&A session following the presentation and discussion.
Empowered Caregivers Forum
Join a forum created to support, educate & share resources with caregivers of a child/adult with sickle cell /thalassemia.