Sickle Cell Awareness Month
September is National Sickle Cell Awareness Month, designated by Congress to help focus attention on the need for research and treatment of sickle cell disease.
Read the 2020 President’s Proclamation here.
Empowered Caregivers Forum (Oct)
Join a forum created to support, educate & share resources with caregivers of a child/adult with sickle cell /thalassemia.
Sickle Cell Awareness Month
September is National Sickle Cell Awareness Month, designated by Congress to help focus attention on the need for research and treatment of sickle cell disease. Read the 2020 President’s Proclamation here.
World Sickle Cell Awareness Day
June 19th has been set aside globally as a day to promote greater awareness of an illness that affects nearly 200,000 Americans and millions worldwide. This year World Sickle Cell day falls on a Saturday. People here in the U.S. and all around the world will take time on and around this day to recognize the first disease to have its molecular basis described, and yet 120 years later, remains an orphan disease with remarkably few treatment options and no widely obtainable cure.
Living SickleSMART
Living SickleSMART virtual education series is part of our Education & Awareness Program and is intended for all audiences, specifically those who live with, care for, or are concerned with the outcomes of individuals living with sickle cell disease.
*This will be a LIVE presentation via Zoom. Attendees are invited to participate in a Q&A discussion following the presentation.
SCD & Reproductive Health Mini Seminar (Nov)
Hosted By: Cayenne Wellness Center & SC RED
Cost: FREE
Living SickleSMART
Living SickleSMART virtual education series is part of our Community Education & Awareness Program and is intended for all audiences, specifically those who live with, care for, or are concerned with the outcomes of individuals living with sickle cell disease.
Empowered Caregivers Forum (Oct)
Join a forum created to support, educate & share resources with caregivers of a child/adult with sickle cell /thalassemia.
Living SickleSMART
Living SickleSMART virtual education series is part of our Community Education & Awareness Program and is intended for all audiences, specifically those who live with, care for, or are concerned with the outcomes of individuals living with sickle cell disease.
Living SickleSMART
Living SickleSMART virtual education series is part of our Community Education & Awareness Program and is intended for all audiences, specifically those who live with, care for, or are concerned with the outcomes of individuals living with sickle cell disease.
Living SickleSMART
Living SickleSMART virtual education series is part of our Education & Awareness Program and is intended for all audiences, specifically those who live with, care for, or are concerned with the outcomes of individuals living with sickle cell disease.
*This will be a LIVE presentation via Zoom. Attendees are invited to participate in a Q&A discussion following the presentation.
Sickle Cell Awareness Month
Stay tuned for a month of adventures as we celebrate with 30 days of Sickle Cell Awareness!
Let’s Talk About Sex: SCD, Dating & Intimacy
Sickle Cell can impact dating & intimacy but it's rarely discussed. Join us to learn more and ask the questions that matter to YOU!
SCD & Reproductive Health Mini Seminar (July)
Hosted By: Cayenne Wellness Center & SC Red
Cost: FREE
Empowered Caregivers Forum (July)
Join a forum created to support, educate & share resources with caregivers of a child/adult with sickle cell /thalassemia.
9th Annual Warriors Convention
This Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created, and hosted entirely by the sickle cell patient and family community.
Pharmacology: How a Good Pharmacist Can Save Your Life
Join us for a conversation with Lametra Scott, PharmD & CEO of Breaking the Sickle Cell Cyle Foundation, as we expand our understanding of the pharmacology field and learn more about why it's a good idea to build a relationship with your pharmacist.
*This is a LIVE presentation via Zoom. Attendees are invited to participate in a Q&A discussion following the presentation.
Correct Use of IV Fluids in a Sickle Cell Crisis
Join SickleCellMN and Dr. Simone Uwan, founder of Sickle Cell Medical Advocacy, as we explore the importance of ensuring you are using the correct IV Fluids during a pain crisis.
*This is a LIVE presentation via Zoom. Attendees are invited to participate in a Q&A discussion following the presentation.
Sickle Cell & Chronic Pain Management Symposium: Power Up Hope
A day of education, resources, shared experiences, and networking.
SCD & Mental Health: Let’s Talk About It!
Join us we discuss SCD and mental health, and how the CaRISMA research study is changing the way individuals with SCD are approaching their mental, emotional, and behavioral health!
World Sickle Cell Awareness Day
An international awareness campaign to celebrate World Sickle Cell Awareness Day annually on June 19
Nutrition in Sickle Cell Disease Conference
Are you interested in nutritional approaches that improve health outcomes for Sickle Cell Patients?
16th Annual SCD Research & Educational Symposium
IN-PERSON AND VIRTUAL REGISTRATION OPTIONS AVAILABLE. VIRTUAL ATTENDEES CAN WATCH ALL MAIN ROOM SESSIONS LIVE. SIMULTANEOUS BREAKOUT ROOM SESSIONS ARE AVAILABLE 30 DAYS AFTER THE SYMPOSIUM.
Medical Perspectives on SCD & Reproductive Health
May is Women's Health Month
Sickle Cell Disease (SCD) can impact puberty, periods, sexual and reproductive health. Individuals who were born female with sickle cell disease may experience delayed onset of puberty, a greater number of pain crisis than males due to normal changes in hormones and some may have difficulty getting pregnant and/or high-risk pregnancies. Unfortunately, research has identified deep disparities in access to reproductive and sexual health care in this area.
Join us in a presentation and discussion with medical providers and experts from Children’s Minnesota’s Sickle Cell Program and The Pediatric Adolescent Gyn Program.
*This is a LIVE presentation via Zoom. Attendees are invited to participate in a Q&A session following the presentation and discussion.
Women's Reproductive Health Roundtable: A Warrior Discussion
May is Women's Health Month
Join Teonna Woolford and Rae Blaylark in this a roundtable discussion with women in the sickle cell community openly discussing the issues that matter to female warriors.
*This is a LIVE presentation via Zoom. Attendees are invited to participate in a Q&A session following the presentation and discussion.
Empowered Caregivers Forum
Join a forum created to support, educate & share resources with caregivers of a child/adult with sickle cell /thalassemia.
SCD & Nutrition: Things You Should Know
Join Kate Shafto, MD as she walks us through a deeper understanding of how food and diet impact our personal health.