2024 National SCD Policy Forum (Day 2)
The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event.
2024 National SCD Policy Forum (Day 1)
The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event.
2023 SCDAA Convention
This virtual conference will address the multifactorial aspects of sickle cell disease and foster the exchange of the latest scientific and clinical information related to the disease through innovative symposia, training seminars, interactive panel discussions and exciting activities designed to educate, motivate and mobilize the sickle cell community.
Empowered Caregivers Forum (Oct)
Join a forum created to support, educate & share resources with caregivers of a child/adult with sickle cell /thalassemia.
Ask Dr. Nelson
Join us each month for safe-space discussion about navigating healthcare with SCD. Topics discussed are by, with and for the sickle cell community. Hosted by Dr. Stephen Nelson and Rae Blaylark.
Ask Dr. Nelson
Join us each month for safe-space discussion about navigating healthcare with SCD. Topics discussed are by, with and for the sickle cell community. Hosted by Dr. Stephen Nelson and Rae Blaylark.
Sickle SMART Session
Stay tuned for another exciting Living Sickle SMART session as we discuss the good, the bad, and most importantly, the honest conversations about the things that matter to YOU, the sickle cell community.
Living Sickle SMART virtual education series is part of our Education & Awareness Program and is intended for all audiences, specifically those who live with, care for, or are concerned with the outcomes of individuals living with sickle cell disease.
RARE Town Hall
Stay tuned for another exciting Living Sickle SMART session as we discuss the good, the bad, and most importantly, the honest conversations about the things that matter to YOU, the sickle cell community.
Living Sickle SMART virtual education series is part of our Education & Awareness Program and is intended for all audiences, specifically those who live with, care for, or are concerned with the outcomes of individuals living with sickle cell disease.
Ask Dr. Nelson
Join us each month for safe-space discussion about navigating healthcare with SCD. Topics discussed are by, with and for the sickle cell community. Hosted by Dr. Stephen Nelson and Rae Blaylark.
Sickle SMART Session
Stay tuned for another exciting Living Sickle SMART session as we discuss the good, the bad, and most importantly, the honest conversations about the things that matter to YOU, the sickle cell community.
Living Sickle SMART virtual education series is part of our Education & Awareness Program and is intended for all audiences, specifically those who live with, care for, or are concerned with the outcomes of individuals living with sickle cell disease.
Ask Dr. Nelson
Join us each month for safe-space discussion about navigating healthcare with SCD. Topics discussed are by, with and for the sickle cell community. Hosted by Dr. Stephen Nelson and Rae Blaylark.
Ask Dr. Nelson
Join us each month for safe-space discussion about navigating healthcare with SCD. Topics discussed are by, with and for the sickle cell community. Hosted by Dr. Stephen Nelson and Rae Blaylark.
Sickle SMART Session
Stay tuned for another exciting Living Sickle SMART session as we discuss the good, the bad, and most importantly, the honest conversations about the things that matter to YOU, the sickle cell community.
Living Sickle SMART virtual education series is part of our Education & Awareness Program and is intended for all audiences, specifically those who live with, care for, or are concerned with the outcomes of individuals living with sickle cell disease.
2023 National SCD Policy Forum (Day 2)
The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event. This tri-collaborative event is hosted by Sick Cells, the Sickle Cell Disease Association of America, Inc. (SCDAA) and the Sickle Cell Community Consortium (SCCC).
2024 National SCD Policy Forum (Day 1)
The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event. This tri-collaborative event is hosted by Sick Cells, the Sickle Cell Disease Association of America, Inc. (SCDAA) and the Sickle Cell Community Consortium (SCCC).
2023 National SCD Policy Forum (Day 1)
The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event. This tri-collaborative event is hosted by Sick Cells, the Sickle Cell Disease Association of America, Inc. (SCDAA) and the Sickle Cell Community Consortium (SCCC).
Ask Dr. Nelson
Join us each month for safe-space discussion about navigating healthcare with SCD. Topics discussed are by, with and for the sickle cell community. Hosted by Dr. Stephen Nelson and Rae Blaylark.
Kidney Health for Sickle Trait Warriors
March is Kidney Health Awareness Month and were talking about “Kidney Health for Trait Warriors” with Dr. Tomia Austin and As One Foundation.
Incorporating Non-Inflammatory Foods Into Your Everyday Diet (Nov)
Join us for our monthly virtual cooking experience filled with food, fun, and learning as we explore easy to use non-inflammatory ingredients and meals that can be enjoyed by the entire family!
Incorporating Non-Inflammatory Foods Into Your Everyday Diet (Oct)
Join us for our monthly virtual cooking experience filled with food, fun, and learning as we explore easy to use non-inflammatory ingredients and meals that can be enjoyed by the entire family!
2022 SCDAA Convention
This virtual conference will address the multifactorial aspects of sickle cell disease and foster the exchange of the latest scientific and clinical information related to the disease through innovative symposia, training seminars, interactive panel discussions and exciting activities designed to educate, motivate and mobilize the sickle cell community.
Empowered Caregivers Forum (Oct)
Join a forum created to support, educate & share resources with caregivers of a child/adult with sickle cell /thalassemia.
Incorporating Non-Inflammatory Foods Into Your Everyday Diet (Sept)
Join us for our monthly virtual cooking experience filled with food, fun, and learning as we explore easy to use non-inflammatory ingredients and meals that can be enjoyed by the entire family!
14th Annual SCD Educational Summit
14th Annual Sickle Cell Disease Educational Seminar, hosted by Cayenne Wellness Center
The theme is Embracing Possibilities! This year’s event is virtual AND in-person! Registration is now open.
11th Annual Sickle Cell Disease Therapeutics Conference
Global Blood Therapeutics (GBT) and the Sickle Cell Disease Association of America (SCDAA) presents the 11th Annual 2022 Sickle Cell Disease Therapeutics Conference (SCDTC) on Wednesday, September 14, 2022. This unique conference brings together key sickle cell disease stakeholders focused on discussing issues impacting the SCD community.
2022 RARE Patient Advocacy Summit
Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit.
This year, the Summit will be a hybrid event so all can attend – in person at the Town & Country Hotel in San Diego, California and live streamed online in our virtual event platform.
Incorporating Non-Inflammatory Foods Into Your Everyday Diet (Aug)
Join us for our virtual cooking experience filled with food, fun, and learning as we explore easy to use non-inflammatory ingredients and meals that can be enjoyed by the entire family!
Let’s Talk About Sex: SCD, Dating & Intimacy
Sickle Cell can impact dating & intimacy but it's rarely discussed. Join us to learn more and ask the questions that matter to YOU!
Incorporating Non-Inflammatory Foods Into Your Everyday Diet (July)
Join us for our virtual cooking experience filled with food, fun, and learning as we explore easy to use non-inflammatory ingredients and meals that can be enjoyed by the entire family!
Empowered Caregivers Forum (July)
Join a forum created to support, educate & share resources with caregivers of a child/adult with sickle cell /thalassemia.