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2022 RARE Patient Advocacy Summit


  • Virtual Meeting San Diego, CA 92108 USA (map)

Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit.

Summit sessions provide attendees with insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies to take home. This year, the Summit will be a hybrid event so all can attend – in person at the Town & Country Hotel in San Diego, California and live streamed online in our virtual event platform.

HOSTED BY: Global Genes

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2022 Walk 4 Sickle Cell Virtual Challenge - wk 4

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September 14

11th Annual Sickle Cell Disease Therapeutics Conference