The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event. This tri-collaborative event is hosted by Sick Cells, the Sickle Cell Disease Association of America, Inc. (SCDAA) and the Sickle Cell Community Consortium (SCCC).
Day One features educational sessions on federal advocacy trends and provides an opportunity to discuss concrete solutions to existing gaps in sickle cell disease (SCD) policy. It also includes opportunities to “practice your pitch” before meeting with your legislators.
Day Two features the Virtual Hill Day. Advocates will have the opportunity to meet with their legislators and educate them about sickle cell disease issues and policy recommendations.
Please note that you must sign up by March 10th to participate in Day 2. Also must have wide availability on Day 2 for meetings.
Learn more about SickleCellMN advocacy efforts at: https://www.sicklecellmn.org/advocacy-resources