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MN Rare Disease Advocacy Day @MN State Capital

  • Minnesota State Capitol 75 Rev Dr Martin Luther King Junior Boulevard Saint Paul, MN, 55155 United States (map)

Do you want to increase your advocacy on behalf of the sickle cell community? Your voice matters and we want you to use it!!!

Join SickleCellMN for #Minnesota #RareDisease Advocacy Day @ MN State Capital as we advocate on behalf of the Sickle Cell/Rare Disease Community!

Tue March 5, 2024
MN Rare Disease Advocacy Day
📍State Office Building
🕑11am - 2pm

March 5th Advocacy Day schedule:
10:30am – 11:30am Opening remarks, PAG collaboration & conversation
12:30pm - 2pm Advocates meet (individually or in groups) with policy makers
12pm – 2:30pm Open House for policy makers

*The advocacy training is open to any advocate wanting to attend regardless of their ability to join the lobby day on March 5th. It will also be recorded for those unable to attend the training live. 

Source: https://bit.ly/rare-advocacy-day-2024
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March 1

FDA Rare Disease Day: Virtual Public Meeting
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March 7

MN Rare Disease Day @University of MN